@Sandra-Holdsworth I do not know. I am not really sure what the best course of action is or what happens with petitions.

@Chris-Johnston @Alies-Maybee Hmmm.... this year's CMA conference is pushing the political activism angle and encouraging PP's to get involved.... I think a brainstorming session is in order.

@Debra-Turnbull I totally get it, and when I say I see no tension between circle of care and need-to-know - I also believe that a robust patient consent process is foundational to both. Sadly, I think those foundations are pretty flimsy in practice.

I’ve also never seen any example of a consent repository, but in an ideal future where health systems are seamlessly connected in a way that supports rather than hinders quality care, a dedicated repository would probably be unnecessary. (Pause for wishful sigh while contemplating how far we are from that future)

Since consent is (or I think should be) a fluid thing - with the right to change or withdraw moment to moment depending on all the various factors that affect it (e.g. the patient’s perspective, preferences, circumstances, as well as their perceptions of the provider and the options presented etc.) then in an ideal world it would be rigorously captured / updated / documented in almost every conversation or encounter. Consent would be so interwoven in the record that a separate repository would be inefficient, but meta tagging would still allow independent and dedicated reporting of consent practice at every level from individual patient to nationwide.

And when I say captured, I don’t mean in the way that it’s currently captured as a haphazard tick box exercise to satisfy negligence/liability insurers - but as a core component of care excellence.

Sadly, I think we’re a long way off from that as well. Sigh!

@Donna-Rubenstein @Chris-Johnston Thanks Chris; thanks Donna! That did work.

@Debra-Turnbull OMG I swear the universe is just testing my patience lol! That whole section of their website was non-existent in the early hours and now it's just blinked back into existence. I've snagged a copy before it disappears again. 😉

@Sandra-Holdsworth This is an excellent piece of work, thanks for sharing!

@Chris-Johnston Agree with you very much on this: "collaboration which extends beyond team based care into genuine partnership with patients and their communities".

@Chris-Johnston @Alies-Maybee That happened to me too. Ok, so I registered the day before the event... but still - no response from OSSU whatsoever. 😞

Oh well... was looking forward to it.

@Alies-Maybee This is the 1st time that I'm seeing such an in-depth analysis on interdisciplinary team care. Thanks for sharing - this really was a good survey.

@Joan-Tu I believe if you go on their website (see link above) that they have described the 3 initiatives that were chosen last year. They were not given to the usual big not-for-profits but to real community folks.

@Alies-Maybee Totally agree, great article - it reminded me of the NASEM workshop last year exploring how rehab is essential to longevity and healthy aging.
Workshop Proceedings: Aging, Function & Rehab

Far too often I hear people say they simply bypass rehab as it's beyond their reach financially, even when subsidized to some extent by health insurance - the limitations make it unaffordable.

@Alies-Maybee Absolutely! And there are so many added hurdles for patients trying to access their records. With lots of doctors retiring, leaving or downsizing their practices in BC during and since the pandemic, many choose to place patient records in the hands of commercial data companies.

There seems to be little or no regulation in this area, and the companies seem somewhat predatory. They offer free digital archiving services to primary care doctors, knowing that they can capitalize by charging exorbitant fees for "retrieval" when patients request their records.

Even when records are shared electronically in PDF format, they charge on a per page basis, which can quickly stack up to hundreds of dollars.

@Chris-Johnston Wish you could be here too Chris! We will be thinking about you...

@Alies-Maybee @Donna-Rubenstein That’s fantastic!!

@Debra-Turnbull That sounds like a fantastic model Deb, I haven’t seen any mention of anything similar in the NHS, but can’t say for certain. I’ll keep my eyes peeled 👀