your input please -to shape a symposium

[Donna Rubenstein]

Patient-Oriented Neuroscience Research Symposium
Hello PAN community

We are the Healthy Brains Healthy Lives (HBHL) Equity Diversity Inclusion (EDI) trainee committee and we are organizing a research symposium that aims to bridge the gap between researchers and people with lived experiences of rare diseases of the nervous system. We met with Amy May last spring to discuss our initiative. It is with great pleasure that we integrate her feedback in planning the event: We want to hear voices of people with lived experiences to tailor the event to our audience's needs. We were wondering if you could share the survey we prepared within you networks of patients and people with lived experiences:
Survey link
You can use this blurb to share the survey within your networks: "Healthy Brains Health Lives is an organization that funds brain health research. This year, they are organizing a hybrid research day in November. Researchers want to hear your experiences and preferences to prepare the event. Complete this short survey to join an event that will be tailored to you."

Your collaboration is highly appreciated. Note that the survey is available in English and French and we can accommodate for particular accessibility needs. Please do not hesitate to reach out should you have any questions.
it takes < 10 minutes .Open until Aug 23rd

Have a nice day,

Vasvi

[Chris Johnston]

@Donna-Rubenstein Thanks for sharing Donna!