@Kim-Locke Exactly!

Ethics and safeguards need to be built into whatever AI-framework is being considered. It's all about the guardrails.

Environmental consequences from AI datacenters - perhaps this is a consideration worth adding to the framework. Now, how do we measure that?

I have yet to see WHO is working on the framework and WHAT it looks like.

@Kim-Locke sorry for the delay, I don't know of anything in NS. Try reaching out to some of the PAN members in NS to see if they know.

Thanks for alerting us to this bill!
I have added my name to the supporters!

@Kim-Locke I recall you had difficulties when trying to enrol in the MUN course Kim, I’m so glad you got in. Would love to know how it got resolved if you’re willing to share?

@Alies-Maybee

Thanks for posting this!

Being a transplant from Montréal, I recall the frustration of constantly losing my primary care physicians. This shines a light on the factors for why that was the case.

If I may be so bold in suggesting - there are some important lessons for Ontario to learn in this Québec experiment.

@Jaime-Winkler Done! Thanks for sharing 🙂

@MIchael-Liddell Sounds interesting Michael, I'd certainly be interested if they expand to BC at any point.

@MIchael-Liddell it is in Toronto. If you live there, you could still try to see if you can attend in person.

@Alies-Maybee @Debra-Turnbull @Kim-Giroux @Kim-Giroux If it's of interest, have just received notice of the next Obliquity workshop:

Join us on December 1, 2025 (5:30 PM MST) for the HYBRID workshop An Artistic Exploration of Ancient Healing Fountains and Contemporary Health Apps with Mariléne Oliver. You may attend virtually OR attend in person (Katz Group Centre For Pharmacy And Health Research Building; Room 1080)

Marilène Oliver is an Associate Professor in Art & Design whose artistic research is at a crossroads between new digital technologies, traditional print and sculpture, her finished objects bridging the virtual and the real worlds. She works with the body translated into data form in order to understand how it has become 'unfleshed', in the hope of understanding who or what it has become. Oliver uses various scanning technologies such as MRI, CT, and PET to reclaim the interior of the body and create works that allow us to materially contemplate our increasingly digitized selves. In 2018 Oliver was selected to present her research at TEDMED. Oliver leads LASERAlberta, a series of arts and science public talks affiliated with Leonardo/ ISAST. Oliver currently leads the research projects Dyscorpia: Future Intersections of the Body and Technology, Know Thyself as a Virtual Reality and is the lead of the Art & Working group for the Smartwear Revolution project.

Please click HERE to register to attend.

Note: Previous Obliquity workshop recordings are available to watch on the Obliquity website, and older sessions from their Youtube account.

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@Virginia-McIntyre No worries! I am curious though how it went?

I see they've taken down the conference website pretty promptly.

When I queried (repeatedly) about virtual options, I was told on several occasions that they intended to stream the key notes, but the option wouldn't be added to the site until closer to the date - I suppose that was to ensure they didn't lose any potential sales. I checked back regularly and never found any evidence of it. Did anyone get to stream the key notes?

If anyone from PAN attended, would be very interested to hear:

How it went overall? What you learned? What impressed or disappointed?

And also:

Were there many patient/family/caregiver partners in attendance? Were there any PFCs presenting? Any specific topics or insights worth sharing? Did they draw any conclusions on the main question of 'Where is the Patients Voice?'

Inquiring minds would love to know 🙂

@Alies-Maybee Excellent - thanks for sharing Alies!

@Chris-Johnston

Hi Chris,

This is good (!)... it gives you a perspective into the American mind. Outdated websites are very common. What business has time to remember to update their public-facing webpage content. The answer is none.

A few things to note:

HIPPA has no jurisdiction in Canada, and

they are focusing on PIPEDA - the national privacy law (that applies to business; with exceptions to healthcare). (Light reading for insomniacs...)

It is important to note that - as a result of healthcare being in the jurisdiction of the PROVINCES - the feds must accept what 14 jurisdictions decide regarding healthcare. Personal Health Information (PHI) is a provincial matter governed by provincial privacy law. Transferring PHI between provinces is a nightmare. This, in turn, results in the national interoperability horror story that we currently find ourselves in.

Bottom line: it is up to each province to do its due diligence when it comes to PHI protection... and to which - the Americans are oblivious. Also, each healthcare service provider (hospitals, community care, clinics) must show conformance to privacy; in conformance to multiple professional standards. Heck, the provinces can't get their acts together - imagine the Americans trying to sell software in such an environment.

Just because things are being marketed for the American environment, does not mean Canadian entities need to agree. Take a look at your healthcare delivery organizations; look up their privacy statements. There is a catch phrase out there: "Patient PHI is stored on servers that reside in Canada." My local hospital went so far as to state that the PHI resides in Ontario (I'm based here in Ottawa.) I would love to do a deep dive into all the provinces and their privacy standards... but honestly - who has the time.

I'm going to stop here, 'cause I could prattle on forever. However, feel free to ask questions here and I'll do my best to answer.