@Kim-Locke, this is awesome, thanks for sharing.

@Debra-Turnbull Also. a great question!

@Sandra-Holdsworth Thank you so much for sharing this, Sandra!! This one immediately caught my attention and I’ll definitely be writing my MP about Bill S-243! As a 22-year-old woman who has been navigating healthcare since childhood, I’ve learned VERY early that women’s health is so much bigger than reproductive health. I was diagnosed with juvenile arthritis at 11 and have since navigated chronic illness, pain, mental health, serious illness and the transition from pediatric to adult care. Now getting to bring those experiences into healthcare advocacy makes this feel especially personal. Women and girls deserve research, education and healthcare systems actually designed with our bodies and experiences in mind and not treated like an afterthought and women with lived experience absolutely need to be helping shape whatever comes next, not just consulted at the very end. MP email incoming! Thanks for putting this on my radar!!

@Sandra-Holdsworth I have registered for the sessions, but I was put on a waitlist.

@Sandra-Holdsworth There's no mention in this article of people going to AI to obtain a dx or treatment, which we know happens because of the long wait times in the ER, etc.

@Sangeeta-Chopra-Charron I have added this comment to the ERO that you have specified above.

@Alifa-Khan @Sandra-Holdsworth @Chris-Johnston I was away for the last three weeks in Nova Scotia. I had to sort through my mother's things and help my dad and brother deal with her final affairs. She passed on August 14th from an incredibly aggressive cancer with no cure.

The wifi and network signal is not great there, and I only had access to a real PC once at my dad's office. I'm glad I'm home though, so now I can catch up on these things. Trying to read the forum on an iPhone browser is hard and reply is even harder, even with glasses!

I also really missed my degus, even when they were bad!

The program has assigned me a learning buddy though, and I have to synch up with her during the week.

@Sandra-Holdsworth

You're welcome Sandra!

Boy, there seems to be a supernova of data/info initiatives at the moment.

Here is an Ontario story on the cost of data fragmentation. I like the woman's solution, but am also aware that patients with chronic/complex needs are unable to do this.

At your next doctor's visit - start asking for a paper summary of your visits; start a binder.

Remember: the binder ?

BTW - loved Jay Shaw's AI explanation (big fan). Can't wait to see what else he comes up with 😄

@Alies-Maybee

I wanted to understand what service blueprint was and found this:
customer journey maps vs service blueprints

Based on this discussion, I think we need to redefine what data for secondary use looks like.

What other things - not covered in the above matrix - would people like to see their PHI (personal health information) used for?

What secondary use is off-limits?

@Sandra-Holdsworth

Thanks for sharing Sandra!

@Donna-Rubenstein

Sounds fantastic Donna, thanks for sharing!

@Joan-Tu
Thank you Joan.

For everyone:
this standard is meant to establish "rules" for comparing Artificial Intelligence systems used in Clinical Decision Support (CDS). These CDS systems are getting slowly incorporated into your doctors' EMRs (electronic medical records).

As a standard, this is what a CDS system will be compared to. People like Accreditation Canada will use such standards as a way of reporting on organizations (hospitals, clinics) about their quality of care.

Some interesting components of the standard:

the UAII: acts as a "license plate" for the AI module (sect. 6.3) dataset provenance: there needs to be a trace of what data was used for training the AI module (sect. 7.1.1) AI Decision Summary for patient visibility (sect. 5)

Section 5.4.3 - who was asking about advertising in clinical systems?

@Sandra-Holdsworth

Sounds excellent! I'm in 🙂

@Sandra-Holdsworth

Thanks for sharing Sandra - I've bookmarked this for when things quiet down a little 🙂

@Sandra-Holdsworth

Thanks for sharing this Sandra! I'm in a National Institute of Ageing project that's developing an AI Literacy Guide for the over 50 demographic - so this makes a good comparison. Hopefully NIA will have a shareable version soon 🙂