Based on this discussion, I think we need to redefine what data for secondary use looks like.

What other things - not covered in the above matrix - would people like to see their PHI (personal health information) used for?

What secondary use is off-limits?

@Sandra-Holdsworth

Thanks for sharing Sandra!

@Donna-Rubenstein

Sounds fantastic Donna, thanks for sharing!

@Alifa-Khan did you find a buddy to register with?

@Joan-Tu
Thank you Joan.

For everyone:
this standard is meant to establish "rules" for comparing Artificial Intelligence systems used in Clinical Decision Support (CDS). These CDS systems are getting slowly incorporated into your doctors' EMRs (electronic medical records).

As a standard, this is what a CDS system will be compared to. People like Accreditation Canada will use such standards as a way of reporting on organizations (hospitals, clinics) about their quality of care.

Some interesting components of the standard:

the UAII: acts as a "license plate" for the AI module (sect. 6.3) dataset provenance: there needs to be a trace of what data was used for training the AI module (sect. 7.1.1) AI Decision Summary for patient visibility (sect. 5)

Section 5.4.3 - who was asking about advertising in clinical systems?

@Sandra-Holdsworth

Sounds excellent! I'm in 🙂

@Sandra-Holdsworth

Thanks for sharing Sandra - I've bookmarked this for when things quiet down a little 🙂

@Sandra-Holdsworth

Thanks for sharing this Sandra! I'm in a National Institute of Ageing project that's developing an AI Literacy Guide for the over 50 demographic - so this makes a good comparison. Hopefully NIA will have a shareable version soon 🙂

@Chris-Johnston I’m signed up as well. How about other PAN members?

@Chris-Johnston yes, as I mentioned in the previous comment really great articles on WHD website. It’s great to share some more people get to read this great content and learn.

@Chris-Johnston I glad you enjoyed it. I did as well and there are some really good Articles on the World Health Day website thanks for letting us know about this event.

@Chris-Johnston Thank you for sharing this! I hope that this might inspire and encourage many to share innovative and novel ways to impact the future of health care.

@Kim-Locke @Debra-Turnbull

Steal away - let’s try to socialize it and make it as widely known as Nothing about us without us

@Debra-Turnbull I've also just signed up!

@Alies-Maybee Thank you!

@Chris-Johnston Yes, it’s very dense!

@Kim-Locke

Absolutely Kim,and that’s why we need to keep finding ways to push back, and to ensure the patient voice and perspective is included everywhere at every stage. Not just when it’s too late to make a difference.

@Jenna-Kedy-0

These are excellent examples Jenna, I’ll submit them for inclusion 🙂

@Debra-Turnbull AI can absolutely help catch biased language or wording we might miss, but it shouldn't be the final boss. The Validation Plan is where the magic happens. It's basically asking, "Hey, patient partners; did we actually get this right?" AI can be a great first draft, but lived experience is the gold standard. If the people whose stories we're trying to tell don't see themselves in the final product, we still have work to do!