@Debra-Turnbull This webinar has been postponed.

Please note new link to Register. The previous one didn’t give the option to register
https://us02web.zoom.us/meeting/register/SeyXirc3R66WW5zxKAfGmQ

@Alies-Maybee If it's affecting the patient, I would def want PAN to be involved or even draft something. A Bill of Rights for Patients!

@Debra-Turnbull I'm not going to link it to my pharmacy records, there's no reason for me to do that, esp if Loblaw's wants to make money off my data!

This chatbot can NEVER replace a conversation with a clinician.

I'm quite worried about consent and privacy, and about how people will use it who don't know much about AI.

It's almost like Loblaw's is taking advantage of them.

@Alies-Maybee I was just going to post, thanks for sharing. I registered but will not be able to attend as I'll be heading to get my second cataract fixed..

@Oksana-Hlyva feel free to approach UHN directly. Sandra just posted this as information but is not coordinating participation.

@Debra-Turnbull Thank you

@Marion-Knutson

Many thanks for sharing Marion 🙂

Just adding the link to the Pulse for those who need it:
https://patientengagement.synapseconnect.org/resources/pmc-pulse-september-2026-edition

And the LinkedIn page:
https://www.linkedin.com/company/patient-movement-catalyst/

@Robert-Wells

I went looking for the registration for this event. Got this far: www.scanhealth.ca/news and then

Scan Health 2026-09-19 113212.png

Ummm... please stand by....

@Kim-Locke, this is awesome, thanks for sharing.

@Sandra-Holdsworth Thank you so much for sharing this, Sandra!! This one immediately caught my attention and I’ll definitely be writing my MP about Bill S-243! As a 22-year-old woman who has been navigating healthcare since childhood, I’ve learned VERY early that women’s health is so much bigger than reproductive health. I was diagnosed with juvenile arthritis at 11 and have since navigated chronic illness, pain, mental health, serious illness and the transition from pediatric to adult care. Now getting to bring those experiences into healthcare advocacy makes this feel especially personal. Women and girls deserve research, education and healthcare systems actually designed with our bodies and experiences in mind and not treated like an afterthought and women with lived experience absolutely need to be helping shape whatever comes next, not just consulted at the very end. MP email incoming! Thanks for putting this on my radar!!

@Sandra-Holdsworth I have registered for the sessions, but I was put on a waitlist.

@Sandra-Holdsworth There's no mention in this article of people going to AI to obtain a dx or treatment, which we know happens because of the long wait times in the ER, etc.

@Sangeeta-Chopra-Charron I have added this comment to the ERO that you have specified above.

@Alifa-Khan @Sandra-Holdsworth @Chris-Johnston I was away for the last three weeks in Nova Scotia. I had to sort through my mother's things and help my dad and brother deal with her final affairs. She passed on August 14th from an incredibly aggressive cancer with no cure.

The wifi and network signal is not great there, and I only had access to a real PC once at my dad's office. I'm glad I'm home though, so now I can catch up on these things. Trying to read the forum on an iPhone browser is hard and reply is even harder, even with glasses!

I also really missed my degus, even when they were bad!

The program has assigned me a learning buddy though, and I have to synch up with her during the week.

@Sandra-Holdsworth

You're welcome Sandra!

Boy, there seems to be a supernova of data/info initiatives at the moment.

Here is an Ontario story on the cost of data fragmentation. I like the woman's solution, but am also aware that patients with chronic/complex needs are unable to do this.

At your next doctor's visit - start asking for a paper summary of your visits; start a binder.

Remember: the binder ?

BTW - loved Jay Shaw's AI explanation (big fan). Can't wait to see what else he comes up with 😄

@Alies-Maybee

I wanted to understand what service blueprint was and found this:
customer journey maps vs service blueprints

Based on this discussion, I think we need to redefine what data for secondary use looks like.

What other things - not covered in the above matrix - would people like to see their PHI (personal health information) used for?

What secondary use is off-limits?