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    • Debra Turnbull

      May 28th Ottawa Dinner
      About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé • • Debra Turnbull

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    • Alies Maybee

      Take the OurCare 2025 Survey on Primary Care!
      About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé • • Alies Maybee

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      Debra Turnbull

      @Alies-Maybee This is the 1st time that I'm seeing such an in-depth analysis on interdisciplinary team care. Thanks for sharing - this really was a good survey.

    • Alies Maybee

      Value Based Healthcare Summit - Jun 16-20, 2025 Montreal
      About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé • • Alies Maybee

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    • C

      Resources for Peer Review: Template for Patients & Novices
      Education & Self Learning / Éducation et autoapprentissage • • Chris Johnston

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      This is an excellent open-access article for anyone reviewing papers that involve AI. Actually it’s more than that, since it offers a quick read primer on AI, a glossary of AI terms, a 10 question checklist and an inventory of other approaches - it’s definitely worth checking out:

      https://bmjmedicine.bmj.com/content/bmjmed/4/1/e001394.full.pdf

    • Ron Beleno

      Invitation – Aging in Place Event on April 30, 2025 | FREE | Happening in less than a week
      Education & Self Learning / Éducation et autoapprentissage • • Ron Beleno

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    • Alies Maybee

      Foundations in Patient (Lived Experience) Leadership Programme - Jun 2025
      Education & Self Learning / Éducation et autoapprentissage • • Alies Maybee

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    • Alies Maybee

      AI in Healthcare - from the AMS Conference
      Education & Self Learning / Éducation et autoapprentissage • • Alies Maybee

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    • Sandra Holdsworth

      A multi-faceted approach to patient engagement in qualitative research
      Education & Self Learning / Éducation et autoapprentissage • • Sandra Holdsworth

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      Debra Turnbull

      @Donna-Rubenstein said in A multi-faceted approach to patient engagement in qualitative research

      @Chris-Johnstongood catch.. I did the same .. they sent follow-up correction email, however strangely described it as a registration link error -

      @Chris-Johnstongood catch.. I did the same .. they sent follow-up correction email, however strangely described it as a registration link error -

      Hi Donna & Chris - I'm testing somethign. Deb

    • C

      Interest in Learning Circles?
      Education & Self Learning / Éducation et autoapprentissage • • Chris Johnston

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      @Chris-Johnston Thank you so much for raising this idea - it really resonates with me. The idea of a Learning Circle feels like a natural and much-needed extension of the work we do. It's not just about building knowledge; it's also about building relationships, making meaning together, and offering mutual support. I think of it as part of a "circle of care" that keeps us connected and supported as we do this important, often emotional work.

      I'd be happy to explore how we might get something like this started - perhaps even within PAN. I'd also like to hear from others in this community: is there interest in co-creating this? What would make it meaningful and sustainable? Looking forward to where this conversation might lead.

    • C

      Evidence Synthesis Infrastructure Collaborative (ESIC) Webinar Series
      Education & Self Learning / Éducation et autoapprentissage • • Chris Johnston

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    • C

      April 29: Hybrid Public Dialogue on AI in Health
      Education & Self Learning / Éducation et autoapprentissage • health data ai in health hybrid event • • Chris Johnston

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      Debra Turnbull

      @Chris-Johnston Thanks for sharing! Am registered for this one.

    • Alies Maybee

      PAN at the OSSU Research Day Apr 10, 2025 - come if you can
      About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé • • Alies Maybee

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      Debra Turnbull

      @Chris-Johnston @Alies-Maybee That happened to me too. Ok, so I registered the day before the event... but still - no response from OSSU whatsoever. 😞

      Oh well... was looking forward to it.

    • Sandra Holdsworth

      Peer Reviews Training Module
      Partnering in Research / Partenariat en recherche • • Sandra Holdsworth

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      Sandra Holdsworth

      @Chris-Johnston thank you for the feedback. I’m glad you found it resourceful and that it helped you with your peer review. I will pass your comments onto the team..

      If any other members are reading this, I highly recommend it that you take a look, especially if you’re doing peer reviews or looking to do some in the future.

    • C

      NEW Canadian Primary Care Research Consortium - Consultations March 27-April 10
      Partnering in Research / Partenariat en recherche • canada networks research consultations • • Chris Johnston

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      Donna Rubenstein

      @Donna-Rubenstein update - I attended the Community -Patient Partner consultation session . well organized and structured for participation by everyone (breakout rooms) - questions focused on what are ideal characteristics for this new group . good discussion ; I look forward to learning more about the organizations goals and areas of work envisioned.
      correction to earlier post- this is not replacing other networks , more of a network of networks .

    • J

      How to set up email alerts for clinical trials in Canada?
      Partnering in Research / Partenariat en recherche • • Joan Tu

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      @Chris-Johnston Thank you! I will try out those features.

    • C

      Public Scholarship Webinars & Resources
      Education & Self Learning / Éducation et autoapprentissage • • Chris Johnston

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    • Sandra Holdsworth

      Maritime SPOR Support Unit -
      Education & Self Learning / Éducation et autoapprentissage • • Sandra Holdsworth

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      @Sandra-Holdsworth Many thanks for sharing Sandra! I’ve had the CIHR course my to-do list for a while but this is my incentive to get it finished. 🙂

    • Sandra Holdsworth

      Maxime Lê: A patient’s prescription to the ailing healthcare system is team-based care
      About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé • • Sandra Holdsworth

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      @Chris-Johnston Agree with you very much on this: "collaboration which extends beyond team based care into genuine partnership with patients and their communities".

    • Sandra Holdsworth

      Canadian Centre for Caregiving Excellence - Make Caregiving a National Priority in the 2025 Federal Election
      About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé • • Sandra Holdsworth

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      @Sandra-Holdsworth This is an excellent piece of work, thanks for sharing!

    • Sandra Holdsworth

      CMHA 2025 federal election platform
      About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé • • Sandra Holdsworth

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    • C

      Report: Connected Care Perspectives on Canadian Health IT Market
      About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé • infoway connected care data access • • Chris Johnston

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      @Debra-Turnbull OMG I swear the universe is just testing my patience lol! That whole section of their website was non-existent in the early hours and now it's just blinked back into existence. I've snagged a copy before it disappears again. 😉

    • C

      Webinar 10 April: Good Practice Standards for Public Engagement
      Education & Self Learning / Éducation et autoapprentissage • webinar engagement best practices • • Chris Johnston

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      @Sandra-Holdsworth Yes, I'm keen to hear what the process was and to what extent patients and the public were involved.

      The standards are on their website already - on this page - if you scroll down you'll see them briefly outlined in expandable segments. Scroll further down and there's a link to a more detailed PDF to download.

      I've skimmed through it (but will read it more thoroughly before the session) and at first glance it reads like there's been significant patient input. Time will tell 🙂

    • C

      Webinar 26 March: Framework for Patient Involvement in Rapid Evidence Synthesis
      Education & Self Learning / Éducation et autoapprentissage • webinar rapid review framework • • Chris Johnston

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      @Sandra-Holdsworth Totally agree Sandra, and I think it's always interesting to see whether there are differences between different jurisdictions in how they handle the process, and how they involved patient partners.

    • C

      Webinar 26 March: Emotions in Patient & Public Engagement
      Education & Self Learning / Éducation et autoapprentissage • webinar engagement emotion • • Chris Johnston

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    • Alies Maybee

      South Asian Experience with Cancer webinar
      Education & Self Learning / Éducation et autoapprentissage • • Alies Maybee

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      @Alies-Maybee Many thanks for sharing Alies! This seems like a fabulous site full of resources, so I've bookmarked it to explore when I have more time 🙂

      QR codes rarely work well for me, so I thought I'd post the direct link for anyone who has the same problem 🙂

      https://wellspring.ca/alberta/blog/2025/02/27/upcoming-speakers-south-asian-diverse-experiences-of-cancer/

    • C

      Health Excellence Canada (HEC) Refresh & Reimagine
      Education & Self Learning / Éducation et autoapprentissage • • Chris Johnston

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    • Sandra Holdsworth

      CPCRN March 25 Learning Series | Série d'apprentissage du RCRSP le 25 mars
      Education & Self Learning / Éducation et autoapprentissage • • Sandra Holdsworth

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    • Sandra Holdsworth

      New Engagement Opportunity: Calling healthcare providers and persons with long COVID experience
      Partnering in Research / Partenariat en recherche • • Sandra Holdsworth

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      @Sandra-Holdsworth Thanks for sharing this Sandra!! I kept getting a page not found error from the link. So I searched and found this link which seems to be the same survey 🙂

      https://redcap.link/can-pcc.evaluation

    • Donna Rubenstein

      Opportunity - share experiences and ideas how to better involve patients in healthcare improvement
      About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé • • Donna Rubenstein

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      Debra Turnbull

      @Donna-Rubenstein @Chris-Johnston Thanks Chris; thanks Donna! That did work.

    • Sandra Holdsworth

      What's Health Got to Do with it? - HSPN Webinar
      Education & Self Learning / Éducation et autoapprentissage • • Sandra Holdsworth

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      Donna Rubenstein

      @Sandra-Holdsworth thanks for sharing .This Community discussion looks like a great opportunity for people involved with all areas of health to share ideas!
      posting image as link temperamental
      IMG_3804.PNG
      posti

    • C

      Webinars: Clinicians as Data Curators & Influencing Fairer AI
      Education & Self Learning / Éducation et autoapprentissage • data equity healthcare ai ai ethics • • Chris Johnston

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      @Alies-Maybee The recording of the first talk has now been posted:

      https://youtu.be/V2PxUs1BNrE?si=utp5TXOQlv3cpHFn

    • C

      AbSPORU: How Patient Engagement Influences Research
      Education & Self Learning / Éducation et autoapprentissage • absporu journal club engagement • • Chris Johnston

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      Alies Maybee

      @Chris-Johnston Thanks for this resource. I love that there is a study looking at the influence of PE on research rather than just how to do it.

    • Sandra Holdsworth

      Seniors for Social Action Ontario (SSAO)
      About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé • • Sandra Holdsworth

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    • Donna Rubenstein

      Integrating health justice into Physio practice -opportunity
      Partnering in Research / Partenariat en recherche • • Donna Rubenstein

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    • Debra Turnbull

      Circle of Care vs Need-to-Know
      About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé • • Debra Turnbull

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      @Debra-Turnbull I totally get it, and when I say I see no tension between circle of care and need-to-know - I also believe that a robust patient consent process is foundational to both. Sadly, I think those foundations are pretty flimsy in practice.

      I’ve also never seen any example of a consent repository, but in an ideal future where health systems are seamlessly connected in a way that supports rather than hinders quality care, a dedicated repository would probably be unnecessary. (Pause for wishful sigh while contemplating how far we are from that future)

      Since consent is (or I think should be) a fluid thing - with the right to change or withdraw moment to moment depending on all the various factors that affect it (e.g. the patient’s perspective, preferences, circumstances, as well as their perceptions of the provider and the options presented etc.) then in an ideal world it would be rigorously captured / updated / documented in almost every conversation or encounter. Consent would be so interwoven in the record that a separate repository would be inefficient, but meta tagging would still allow independent and dedicated reporting of consent practice at every level from individual patient to nationwide.

      And when I say captured, I don’t mean in the way that it’s currently captured as a haphazard tick box exercise to satisfy negligence/liability insurers - but as a core component of care excellence.

      Sadly, I think we’re a long way off from that as well. Sigh!

    • Alies Maybee

      Are US doctors part of the answer to our shortages?
      About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé • • Alies Maybee

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      Debra Turnbull

      @Chris-Johnston @Alies-Maybee Hmmm.... this year's CMA conference is pushing the political activism angle and encouraging PP's to get involved.... I think a brainstorming session is in order.

    • J

      Petition: Implementation of a fragrance-free policy in health care establishments
      About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé • • Joan Tu

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      @Sandra-Holdsworth I do not know. I am not really sure what the best course of action is or what happens with petitions.

    • J

      Patient-Led Research Hub
      Partnering in Research / Partenariat en recherche • • Joan Tu

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      @Chris-Johnston Thank you. I do keep up with the literature however none of the researchers or clinicians reply other than the students who tend to only publish on allergic contact dermatitis in passing. I run the Facebook page “Contact Dermatitis Allergy Eczema Canada” to keep track of articles of interest and share them with others. Eventually I may want to do more when I have more time and resources.

    • P

      New Demo Topic
      About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé • • Pat Demo

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    • P

      Demo topic or post
      About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé • • Pat Demo

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