administrators

Eva Villalba of the Quebec Cancer Coalition is sharing this exciting opportunity with us.

The Summit will include a strategy on developing a value based healthcare system in Canada that will benefit everyone, and improve patient health outcomes. Please register soon as space is limited

The link to the Value Based Healthcare Summit

David Gilbert from InHealth Associates in the UK, one of their senior patient/caregiver partners has both a newsletter and a leadership course (which PAN sponsored a few years ago). He is also a member of PAN.

David is about to run the course below. Here' what he is saying:

As you can see, newsletter subscribers get a discount. I hope some will join. I ran about twenty sessions of this programme a few years back, and it seemed to go down well.

Foundations in Patient (Lived Experience) Leadership Programme (June 2025)

This programme is designed for patients/users/carers and non-patients, Patient and Carer Leaders, health professionals, managers, non-clinical staff and those from the independent, voluntary and charitable sector. And it is open to international attendees.

This programme lays the foundations for understanding patient (lived experience) leadership. It leads you through:
• The principles of patient leadership, what it is and where it came from;
• The qualities of an effective patient leader;
• The different roles for a Patient (Lived Experience) practitioner or leader
• Benefits/impact;
• Support needed (including the emotional labour and payment issues) and - models of embedded patient leadership.

The four 3-hour sessions take place on consecutive Fridays, between 3:00pm and 6:00pm UK time on 6th June, 13th June, 20th June and 27th June. Delivered via Zoom.

Costs
For this 12 hour programme, the usual cost is £190. As a subscriber to the InPatient Newsletter it will cost £175. Use the discount code in the recent edition.

If you are a patient, carer or someone with ‘lived experience’ and would find it a struggle to pay the amount stated, please get in touch with me and we can have a chat about what is feasible for you.

More details, and link to booking, below.

Learn more and book

Keep in touch, spread the word, good luck with the work.

Best wishes,

David
David Gilbert, InHealth Associates Director

Please consider participating in and sharing widely the OurCare 2025 survey on primary care in Canada. This is a follow on survey to the work of Tara Kiran that resulted in the OurCare Standard.

The survey will take approximately 10-15 minutes and is available on-line until July 9, 2025 date. It is being led by Dr. Tara Kiran at MAP Centre for Urban Health Solutions in partnership with the Canadian Medical Association. Your participation is completely confidential.

https://www.ourcare.ca/survey/

All, I had the great opportunity of attending the 2025 AMS Healthcare Conference – Getting Practical: Implementing AI in Healthcare on Apr 8. These are the materials coming from that day that are worth checking out. My personal impression was that as of 2024-25, AI has crossed over a divide and now is able to beat out humans on a regular basis. Also, the impact on healthcare is gaining exponentially.

I am happy to share this resource created using AI tools that reflect the collective thinking of the day:

• Executive Summary: A three-page synthesis of the conference’s key themes, calls to action, and overall impressions.
April 8 Conference Summary.pdf

So we did the panel and I believe we did PAN and the report proud. Lots of positive comments to us personally and references to what we said by later panelists.

Such a treat to do this in person and connect with folks face-to-face.

@Chris-Johnston Jay Shaw out of Womens College Hospital Toronto has been focus on ethics and AI for a long time, is a colleague and supporter of PAN and genuine good guy.

For those of you in Toronto or easy commuting distance, the Ontario SPOR SUPPORT Unit is holding their 10th anniversary research day on Apr 10 at the MaRS Centre.

PAN was asked to form the afternoon plenary panel and talk about both PAN and Reimagining the research landscape, the report PAN did for CIHR SPOR last year. Annette McKinnon, Alies Maybee and Sandra Holdsworth will cover the past, present and future of patient/caregiver involvement in research based on the findings of the PAN report. The past will cover what led to the founding of PAN.

Our report continues to provoke thought and discussion about how research needs to evolve to more effectively include patient and caregiver engagement to make research more meaningful.

If you can make it, please register here: https://ossu25.swoogo.com/OSSU25

This speaker series aims to shed light into the unique experiences of
members of South Asian communities who have been affected by cancer. By bringing together experts and individuals with lived experiences, we
hope to come together to learn more about the values, strengths, and
unique needs of these communities.

Thurs, April 3 6:30 - 8pm MST

Free, online

Speaker Series South Asian Experiences with Cancer (1).pdf

@Chris-Johnston All good materials for us to learn more about AI in healthcare and so important for us going forward.

@Chris-Johnston Thanks for this resource. I love that there is a study looking at the influence of PE on research rather than just how to do it.