Patient information Manual-Patient oriented Research: Resources available ?

[Donna Rubenstein]

I am participating on a BRIC NS working group to develop a patient information manual about patient-oriented research. The driver is that most available resources were written for researchers and institutions, not for patients . The starting point is material from the INVOLVE project in the UK , which is a good base. I am wondering if there are other models/resources to draw on across Canada ? Suggestion/ideas welcome ..thank you

background: BRIC =‘Building Research for Integrated Primary Healthcare in Nova Scotia’. One of their objectives is to build capacity in NS for design and application of patient-oriented research. They are funded through CIHR, and works with NS government and Dalhousie University .

[Diana Ermel]

Hi

The Partners in Research program out of Princess Margaret is completely patient oriented.

Knowledgetranslation.net then in the drop down under education and programs

[Annette McKinnon]

Alies and I , along with Brian Clark and Emily Nicholas Angl created tools for patient and researcher orientation (two separate decks of slides, and also an evaluation tool, funded by the Ontario SPOR Support Unit and using Patients Canada as the vehicle. They have since removed the work and it is housed now on the OSSU site

https://ossu.ca/for-researchers/patient-engagement-resources/

Annette