Survey about Digital Health ends Dec 20, 2019

[Annette McKinnon]

This is not a PAN survey. I am passing it on because I like to see what "they're" up to - they being almost anyone. I didn't like the slant on some of these questions but you may disagree.

What is the opportunity?

Digital Health Canada https://digitalhealthcanada.com/ has created a survey to ask patients, family members and providers about access to digital health information and solutions. The Community of Action on the Digitally Empowered Patient created this survey. You are being invited to participate by completing this survey.

What am they asking patients and caregivers to do?

This survey will collect information about what patients, family members and providers think about digital solutions to providing better health care. The survey is being run by Digital Health Canada and is anonymous. Your name or information that could identify you will never be asked or collected without your permission. The results of the survey will be used by Digital Health Canada and published, being widely available to you and others to look at. The goal of publishing the results is to help generate more conversation and awareness of digital health services, what is wanted, what is helpful and where more work and attention needs to be placed.

Time Commitment: Online Survey tool, 10-15 minutes

How you can help:

Please consider responding to this brief survey on your views about digital health services. This is an anonymous survey; we will never collect information that identifies you without your permission. The survey link is here: https://www.surveymonkey.com/r/empowered_patient

TO APPLY:

For more information: Patrick Clifford, pclifford@southlakeregional.org

Deadline: Friday December 20th, 2019

[Denyse Lynch]

Thanks Annette - I completed the survey and like you found I did not like the slant of some of the questions... this leads me to be concerned about the validity of the results they will obtain.

Were any patients/caregivers at the table to input in to the survey design???

Best,

Denyse

[Annette McKinnon]

Probably not, I would venture to guess

[Alies Maybee]

You raise one of my big concerns, the "slant" of surveys. I find often there seems to be thinking that is in a narrow box and either asks off base questions or omits pertinent ones. Sometimes on a scale of 1 to 5, for example, if I don't see any valid options I pick 3 - right in the middle and then wonder how valid the results are.

I do favour adding in some interviews or focus groups to survey results. This sometimes help with slants and inaccuracies.

It does help to have patient partners involved in the survey design but then we need to be somewhat savvy to push back against bias and omissions.

[Laurel Radley]

When I begin filling out a survey, and perceive a "slant", it makes me suspicious that the survey has not been designed to get genuine input, but rather has been designed to get specific input supporting a specific idea for lobbying purposes,or to tick off a box saying that patients support the idea. I like to find out as much as possible about the source of surveys before participating, and sometimes I discontinue part way through when I think the design is biased.

[Alies Maybee]

Interesting how a number of us ind ways to deal woth surveys we feel are off base or slanted. Perhaps each survey should ask a question at the end to find out what we think about the survey. Thoughtss?