Clinical Trials Ontario - livestreamed sessions at next week's conference on patient engagement with clinical trials

[Dawn Richards]

Hi Everyone:

This is my first post! Some of you know me as a patient advocate (with the Canadian Arthritis Patient Alliance) and I'm also self-employed, working mostly in the area of patient engagement and also in science in general (I have an education in analytical chemistry).

I work for Clinical Trials Ontario (www.ctontario.ca) running its patient and public engagement activities. On that front, CTO has a conference next week and we'll be live streaming 2 sessions that are of most interest to patients and the public. All information about them (registration, speakers, etc.) are under my signature here. I will be tweeting from @TO_dpr and Annette will also be there wearing her many hats. If the sessions fill to capacity or you can't make them, they will also be recorded and shared online shortly after the conference.

Feel free to contact me if you have any questions at all about this.

Dawn

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Registration link: https://secure.e-registernow.com/cgi-bin/mkpayment.cgi?state=3149 (or for each individual session below).

March 27, 2018
Registration	Copy and paste this link in to your browser to register: https://secure.e-registernow.com/cgi-bin/mkpayment.cgi?MID=3149&state=step2direct&event=500000533698475 You will receive a confirmation email after you register that contains a link to watch the session.
3:30 - 4:55 pm (Eastern)	Finding and Joining Clinical Trials - Experiences and Learnings Clinical trials simply don't happen without participants. What do we understand about the specific opportunities and challenges that exist for people who wish to find and join a clinical trial? We'll hear from a patient, caregiver, health charity and family physician who will shed light on those experiences, and present some initiatives and resources that have been created to help potential participants find and join a clinical trial. Making it Easier for Patients to Understand and Participate in Clinical Trials Bev Heim-Myers (Moderator),CEO, Huntington Society of Canada How Clinical Trial Reform Can Help People With Lethal Diseases Extend Their Lives and Live Well John-Peter Bradford, CEO, Life Saving Therapies Network Finding out About Trials in Family Medicine: How Family Practice Based Research Networks and their Data Can Help Michelle Greiver, Acting Director, University of Toronto Practice-Based Research Network (UTOPIAN), Adjunct Scientist, Institute for Clinical Evaluative Sciences Navigating Through Neuroblastoma and Therapy Induced Myelodysplastic Syndrome Kirby Kim, Caregiver Representative and Contributing Member, Neuroblastoma Canada A Patient's Perspective Navigating the Clinical Trial Process: Challenges and Positive Outcomes Tina Ceroni, Clinical Trials Ontario Patient and Public Engagement Advisory Group Member Clinical Trial Support Center Services: Patient Experiences Using the Information Resource Center Sarah Khan, Patient Education & Support Manager, Ontario Region, The Leukemia & Lymphoma Society of Canada
Questions during the session for the panel If you have questions during the session for the panel, feel free to tweet them to @TO_dpr or email them to dawn.richards@ctontario.ca. We will have the panel answer as many of these questions as possible, and potentially compile responses to those we don't have time to answer and share them with you.

March 28, 2018
REGISTRATION	Copy and paste this link in to your browser to register: https://secure.e-registernow.com/cgi-bin/mkpayment.cgi?MID=3149&state=step2direct&event=500000534169990 You will receive a confirmation email after you register that contains a link to watch the session.
10:45 am - 12:00 pm (Eastern)	Exploring Models of Patient Engagement Patient engagement with clinical trials remains a hot topic, and for many, uncharted territory. A variety of perspectives (patient, pharma, academic, and government-funded) will share their efforts related to ensuring patients and caregivers are engaged with clinical trials, including the evaluation of that engagement. National and international initiatives demonstrate a breadth of ways to integrate patient and caregiver voices with clinical trials, all aimed at creating more robust trials and outcomes. Ken Getz (Moderator), Director, Sponsored Research Programs and Research Associate Professor, Tufts Center for the Study of Drug Development Patient Group Pathways to Cancer Clinical Trials Barry Stein, President and CEO, Colorectal Cancer Canada Including Patients in the CADTH Scientific Advice Program: Ask, Listen, Advise Ken Bond, Director, Patient Engagement, Ethics and International Affairs, Canadian Agency for Drugs and Technologies in Health Chamber Music to Symphony: Integrating Patient Community Insights in Medicine Development Through a Cycle of Internal and External Engagement Roslyn Schneider, Global Patient Affairs Lead, Pfizer Patient Engagement and a Clinical Study in the Making: From Theory to Practice Chantal Lacasse, Senior Clinical Operations Manager, Clinical Research, AbbVie Advancing the Science of Patient Engagement Through Evaluation Julia Abelson, Professor, Health Research Methods, Evidence, and Impact, McMaster University
Questions during the session for the panel If you have questions during the session for the panel, feel free to tweet them to @TO_dpr or email them to dawn.richards@ctontario.ca. We will have the panel answer as many of these questions as possible, and potentially compile responses to those we don't have time to answer and share them with you.

[Gail Bellissimo]

As a proud member of Clinical Trial Ontario's Patient & Public Advisory Group, I'm looking forward to this information packed two day conference. I hope you register & join in virtually!