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Thought this may be of interest to some of you.
Empirically based conceptual framework for fostering meaningful patient engagement in research
http://onlinelibrary.wiley.com/doi/10.1111/hex.12635/full
Thanks Amy, I am a co-author on the study, so pleased to see you post it.
(Maybe not co-author but collaborator or patient partner - not positive)
Annette