New website: My Health Data Path -- learn about your health data

[Alies Maybee]

Roche Canada has launched the data literacy website! As we go forward, all of us will need to become more health data literate both in order to manage our own care but also to understand how our data can be managed for public health planning and research. As patient partners, we may be asked more and more to be involved in projects where understanding health data is useful. Do take a look!

This is a website designed to help you understand how #healthdata is used, the impact of sharing health data, and why it's important. Patients and people co-created with our team of collaborators from Day 1! Find out more: MyHealthDataPath.ca

The collaborators are named on the site - please be sure to check that section out.

Next steps for the site:

Jan/Feb - Two additional languages will be added - Plains Cree and Northwestern Ojibwe. Followed quickly by Italian, Portuguese, Spanish, and several other languages.

Jan - May: 6-10 Additional Data Paths will be crafted:

- secondary use of data, German perspective

- Indigenous - travel for care

- juvenile diabetes (caregiver role)

- Eastern European path describing how data is received (on paper)

And more!

[Claire Snyman]

This is great! excellent resource and idea!

[Denyse Lynch]

Just read this well-crafted, easy to read, comprehend and relatable, website. With appreciation and a big thank you to everyone who collaborated, invested time, their best thinking, lived experiences and talents on building this much-needed, long-awaited and easy to follow site. It is "patient focused" , educates, informs with easy access, understandable terminology definitions, provides relatable examples and, is supported with numerous resources which engender confidence.

Encouraging "everyone" who receives/provides health care to invest their time to review the website, provide input, feedback and share "widely" with their networks. We have waited such a long time for this integrated very helpful assistance.
Thank you again. Denyse