Assessing Participant-Centered Outcomes to Improve Clinical Research

[Donna Thomson]

Hi Everyone,

Does anyone know of a good scale to evaluate outcomes in efficacy of pt/family engagement in research? I found one, but looking for others - this is what I found:

International Journal of Consumer Studies ISSN 1470-6423

A model and measure for quality service user involvement
in health researchijcs_901 532..539
Elizabeth Morrow1
, Fiona Ross2
, Patricia Grocott3 and Janette Bennett1
1
National Nursing Research Unit, King’s College London, London, UK
2
Faculty of Health and Social Care Sciences, Kingston University and St George’s, University of London, London, UK
3
Florence Nightingale School of Nursing and Midwifery, King’s College London, London, UK

Let me know, thanks and Happy Holidays!

Donna

[Susan Macaulay]

Might these links may be helpful?

Patient involvement in clinical research: why, when, and how

Assessing Participant-Centered Outcomes to Improve Clinical Research

If you can get to the full articles at these links, you can then go to the footnotes and references which might provide interesting leads...

Also, I wonder if PCORI might be able to help:

https://www.pcori.org/

Susan

[Donna Thomson]

Thank you, Susan!

[Susan Macaulay]

YW & happy new year