The CPPS survey from 2020 - first Paper!

[Annette McKinnon]

The first paper using data from the lengthy survey that over 500 of us filled out has arrived. There will be more to come.
https://bit.ly/3Fsy5Rd

The impact of COVID-19 on patient engagement in the health system: Results from a Pan-Canadian survey of patient, family and caregiver partners

Patient Contribution
Patient partners were important members of the Canadian Patient Partner Study research team. They were engaged from the outset, participating in all stages of the research project. Additional patient partners were engaged to develop and pilot test the survey, and all survey respondents were patient, family or caregiver partners. The manuscript is coauthored by two patient partners

ACKNOWLEDGEMENTS

The authors gratefully acknowledge the patient, family and caregiver partners who completed this survey, the groups and individuals who assisted with the promotion of the survey, and the patient, family and caregiver partners who pilot-tested the survey and who provided feedback and support during the survey development phase. We also thank Eleonora Bogdanova and Audrey L'Espérance of the Centre of Excellence on Partnership with Patients and the Public (CEPPP) for their assistance with the implementation of the survey in French. This study was supported by a Project Grant from the Canadian Institutes of Health Research (Funding Reference # 165883).