May 7/26 Discuss the Patient Charter for the Accountable Use of AI in Healthcare

[Alies Maybee]

UHN has produced this charter and is holding a discussion May 7.

Join us next Thursday, May 7, for a discussion on the Canadian Patient Charter for the Accountable Use of AI in Healthcare, co-designed with patients, families, and health leaders.

The discussion will feature Mohit Arora, Rebecca Charow, Laura Williams, and David Wiljer as they highlight how patient perspectives are shaping the ethical, transparent, and equitable use of AI; outline the Charter’s development through a mixed-methods approach; and examine key tensions and opportunities for building trust and supporting meaningful patient engagement in practice.

Location: 200 Elizabeth Street, 10th Floor, Eaton North, Conference Room (Room 240)
Or register to join virtually via Microsoft Teams: https://lnkd.in/dhRdV7Tb
Coffee, tea, and snacks will be provided

These monthly sessions aim to foster dialogue and connect researchers from across UHN. Don’t miss this opportunity to engage and collaborate!

Centering Patient Priorities: Insights from Canada’s Patient Charter for the Accountable Use of AI in Healthcare

HYBRID ROUNDS Mohit Arora Patient advocate and Board and committee member at Toronto Western Family Health Team Rebecca Charow, MSc Evaluation Lead, Digital Compassion Research Lab (UHN) Laura Williams, MSW, RSW, DSc(c) Senior Director, Patient Experience (UHN)

WHEN Thursday May 7, 2026 12:00 – 1:00pm
WHERE 200 Elizabeth Street, 10th Floor Eaton North, Conference Room (Room 240) David Wiljer, PhD Executive Director, Education Technology Innovation (UHN)

[Chris Johnston]

@Alies-Maybee

Many thanks for sharing this, Alies. I've registered, but I have a medical appointment and if they're running late (sigh, as always) I may not make it back in time.

I actually commented on the charter when I saw it posted on Linkedin - because although it's a wonderful piece of work, it leaves me with a nagging concern.

Consent is mentioned several times in the patients' quotes - but only once in the body text. The quotes express the desire of patients and caregivers to retain an active right of consent - to right to give, withhold, withdraw, or modify consent on an iterative basis depending on the context and the specific ask - which as a patient and patient partner, I absolutely endorse. Yet that's not reflected in the body text, which makes one vague reference to information on 'what consent means', which seems an odd discrepancy. If the patients' input is being centred, I'm not sure how this key issue of consent failed to get incorporated into the main text.

Perhaps it's an oversight, but I worry that any organization choosing to adopt this charter will focus on the body text, rather than the quotes which can be dismissed as anecdotal or for illustrative purposes only. That might seem a trivial detail to some, but it's the kind of loophole that keeps me awake at night.