SHARED COMMITMENT TO PUBLIC INVOLVEMENT IN HEALTH AND SOCIAL CARE RESEARCH

[Sandra Holdsworth]

The International Patient and Public Involvement (PPI) Network’s aim is to work together to build a world where PPI is an integral part of health and social care research. We have joined other health and social care research organisations to sign up to the Shared Commitment to Public Involvement in Health and Social Care Research. The Shared Commitment aims to bring about changes that will improve the practice of PPI in health and social care research.

In signing this commitment, the International PPI Network acknowledges that the practice of involvement varies across the world, in other countries, settings, and healthcare and research systems. This statement of support (see below) refers to the UK Standards for Public Involvement. The Network recognises that other countries and regions will also have standards and guidance on good PPI practice. We will work to identify and promote national and international standards, guidance and good practice on PPI from across the world.

The statement, signed by leaders at each organisation, reads:

"Public involvement is important, expected and possible in all types of health and social care research.

Together, our organisations and members fund, support and regulate health and social care research. This statement is our joint commitment to improve the extent and quality of public involvement across the sector so that it is consistently excellent.
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From International PPI Network Newsletter

People have the right to be involved in all health and social care research. Excellent public involvement is an essential part of health and social care research and has been shown to improve its quality and impact. People’s lived experiences should be a key driver for health and social care research.
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When we talk about public involvement, we mean all the ways in which the research community works together with people including patients, carers, advocates, service users, and members of the community. Excellent public involvement is inclusive, values all contributions, ensures people have a meaningful say in what happens and influences outcomes, as set out in the UK Standards for Public Involvement.
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Working together we will support the research community to carry out excellent public involvement. We will provide or share guidance, policies, systems, and incentives. We will:
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listen to and learn from the people and communities we involve and apply and share that learning build and share the evidence of how to involve the public and the impact this has support improvements in equality, diversity, and inclusion in public involvement promote the UK Standards for Public Involvement

We will embed this commitment into the decision-making processes of our organisations. You can find more from each of the signatories by clicking on the link below:

Shared Commitment to Public Involvement in Health and Social Care Research partners"

[Chris Johnston]

@Sandra-Holdsworth Thanks for posting this Sandra! Browsing their website I noticed that IPPIN are also hosting a series of webinars in conjunction with Cochrane Learning Live which sound really interesting:

• 10 Oct 2024 HEAlth caRe needs of the Deaf (HEARD): Using community-based participatory research to address healthcare access challenges of the Deaf community in Malaysia

• 26 Nov 2024 Storytelling for impact: Creating a storytelling program for patient partners in research

• 04 Dec 2024 Engaging indigenous patient partners: Exploring successes in indigenous patient-oriented research in Canada

https://intppinetwork.wixsite.com/ippin/webinar-series