Canadian research study done by research trainees

[Annette McKinnon]

Another mention for PAN

Moving patient-oriented research forward: thoughts from the next generatiion of KT researchers http://bit.ly/2Mm01P9 Many approaches... that purport to engage the community use the language of patient involvement and engagement, but do not meaningfully involve them in the research process

Here's the paragraph about PAN below.

we discussed significant challenges in recruiting, establishing, and maintaining research partnerships among diverse patient and family stakeholders, and vulnerable populations, in particular. Although optimal engagement strategies in such populations remain unclear, acknowledgement of this concern highlights the careful consideration participants are giving to patient partner identification and the implications of the resulting research. To help address this challenge, we recommend trainees utilize established patient networks, such as Patient Advisors Network and Patient Voices Network, to engage patients before they begin their research projects. These networks follow an established process to identify and link patient partners and researchers, as well as providing important guidance on how to sustain and strengthen engagement throughout the research process. This approach not only reduces the onus on trainees to establish relationships on their own, but also contributes to the establishment of the patient engagement community throughout Canada.