AI: A Bill of Rights for Patients

[Chris Johnston]

At the National Health Engagement Network (NHEN) meeting today, someone posted a link to a proposed Patients AI Bill of Rights.

The article is worth a read, but the list of rights proposed are as follows:

• The Right to Informed Consent for AI Use: You must be told when AI is being used in your care and must consent to it.

• The Right to Understand AI's Role: You have the right to a clear, plain-language explanation of what the AI does, its limitations, and how it uses your data.

• The Right to Data Privacy and Security: Your health data must be protected with robust security, and you have the right to know how it is collected and used.

• The Right to Refuse AI-Supported Care: You retain the right to opt-out of AI-driven diagnosis or treatment without penalty.

• The Right to Human Oversight and Intervention: An accountable human professional must always be in the loop to review and override AI-generated recommendations.

• The Right to Safety from AI Harms: AI tools must be rigorously tested, monitored, and proven safe and effective.

• The Right to Equitable AI Treatment: You have the right to care from AI systems that are free from bias and have been designed to ensure equitable outcomes for all populations.

• The Right to Accountability: In the event of an error, there must be a clear and transparent process to determine responsibility.

• The Right to Control Your Data: You must have meaningful control over how your personal health information is used for AI development and deployment.

• The Right to Access for All: AI technologies must be designed and deployed in a way that is accessible to all, including vulnerable populations and those with limited digital literacy.