On Being A Patient Partner - from ON Ministry PFAC

[Alies Maybee]

I thought this was worth sharing. It is a good description and reminder of what it is to be a patient partner.

Being a Patient Partner.pdf . I think these points presented by Julie Drury and Mark Weir (Team Lead, ON MOHLTC Patient Engagement Secretariat) at the December Provincial PFAC Leadership Table meeting resonate.

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Thoughts???

Alies

[Samira Chandani]

Hi Alies, where can I find this document?

[Claire Snyman]

I think these points are all very relevant and good to take on board as a patient partner - thanks for sharing!

[Jeanette Smith]

I have recently been accepted as a patient advisor on a PAC and I think this could be very helpful to me. Do you have a link??

[Alies Maybee]

Jeanette, wonderful that you are going to be on a PAC. Here is the link which I very unhelpfully did not have in the original post which I have now corrected:

Being a Patient Partner.pdf

Cheers! Alies

[Jeanette Smith]

Alies, thank you, and wow! on the speedy response!

Jeanette

[Denyse Lynch]

Doing some surfing on the HQO website, I found a reference to a "helpful & user-friendly guide" for patient advisors (developed by Alta Health Services at:)

https://www.albertahealthservices.ca/assets/info/pf/pe/if-pf-pe-engage-toolkit.pdf

It consists of "what" patient advisors should consider, before "taking on" a project, "how to determine" if the project is a good fit for advisors, "questions" we, as advisors should be asked and "what"toask project leaders/recruiters before joining a project, the roles & responsibilities of advisors, employed staff and/or project leaders, including defining the role of a "staff liaison", the "How to's" of Chairing Meetings, a "Meeting Effectiveness survey" and "Evaluating" Engagement initiatives from "advisors' perspectives.

Health Quality Ontario(HQO) has developed an advisor framework. Their's provides some structure but is not as helpful in the "how and what" patient advisors consider and ask about the project. As we invest precious, limited time, energy on initiiatives, I'd like to be more efective & efficient in making informed decisions before getting involved.

My challenge as a Patient Advisor has been the volume of info about the PA role, with massive amounts of information articulated by "many" different health organizations or provincial health systems. To be more patient advisor centered, the information "out there"let's consolidate it,otherwise being educated is "drinking the information" from a fire hose - time consuming, trying to consolidate it ourselves. We already have sufficient barriers to being engaged.

Would like very much to learn how members feel about this Alta Guide and if anyone has uncovered another better or one of the same calibre. We've discussed creating such a document, but let us not re-invent the wheel. Look forward to hearing from others once you've had a chance to review this guide.

Cheers & best, Denyse