About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé
    Loading More Posts
    • Oldest to Newest
    • Newest to Oldest
    • Most Votes
    Reply
    • Reply as topic
    Log in to reply

    Patient-led collaborative on Long COVID
    2
    2
    4

    This topic has been deleted. Only users with topic management privileges can see it.
    • Alies Maybee
      Alies Maybee last edited by

      Take a look at this.  I think that patients and patient partners will need to take the initiative more and more going forward. Thoughts?<br><br>The <strong>Patient-Led Research Collaborative</strong> is a group of Long Covid patients who are also researchers. We were born out of the

      Body Politic Slack support group

      and did the first research on Long Covid in April 2020. We are all researchers in relevant fields – biomedical research, participatory research, neuroscience, cognitive science, public policy, machine learning, human-centered design, health activism – in addition to having intimate knowledge of COVID-19.
      https://patientresearchcovid19.com

      1 Reply Last reply Reply Quote Edit 0
      • Falkot3
        Falkot3 @Alies Maybee last edited by

        Check out The COVID-19 Global Rheumatology Alliance. There may be some long Covid resources. 

        1 Reply Last reply Reply Quote Edit 0
        • 1 / 1
        • First post
          Last post