About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé
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    New Rare Disease Podcast!
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    • Lelainia Lloyd
      Lelainia Lloyd last edited by Falkot3

      I wanted to share with you some exciting news! I’ve been a patient partner with Alexion pharmaceuticals for 3 years. Last June they approached me to see if I would be interested in hosting a podcast about NeuromyelitisOptica (NMO), the rare disease I live with. Not only am I hosting the show, but I chose all the topics and wrote all the content.

      We launched NMOSD Your Way on Rare Disease Day, February 28th, 2022. There are 8 episodes in season one and three have already been released. A new episode is released every other Monday. While the podcast is through the lens of NMO, it has common themes that resonate with those living with other rare diseases or chronic illness.

      You can find all the episodes on the following platforms:

      Spotify:
      open.spotify.com/episode/
      1HyfbSVTyB3d1e2TLmI0Gg?si=98Skw8FvRc-y5pf4zNng4w

      Audible:
      audible.ca/pd/NMOSD-Your-…

      Google Podcasts:
      podcasts.google.com

      I hope you’ll check it out!
      Lelainia Lloyd,
      Host
      NMOSD Your Way Podcast
      58051354-0601-4CEF-B2F0-4A1EE8A46447.jpeg20220328-15499-busiw7.jpeg

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