Patient Engagement & Partnership Impact Tool

[Sandra Holdsworth]

"The Engage with Impact Toolkit was developed by a Working Group of patient, family and caregiver partners, health system researchers, engagement leads and government personnel. The Working Group was supported by the Public and Patient Engagement Collaborative at McMaster University, led by Dr. Julia Abelson. https://www.evaluateengagement.ca/

[Diana Ermel]

Just had a fast look. All I can say is wow, and what incredibly comprehensive work.

[Sandra Holdsworth]

Yes definitely a wow! Lots of work went into this. Many patient partners involved including Alies.

[Denyse Lynch]

Thank you Sandra - a much needed, comprehensive approach to patient engagement that I personally find encouraging and motivational. Having worked on a number of projects, which I enjoyed yet, were missing this roadmap, structure and framework. Have already completed a few of the modules which are a great help, as I look back and review some of my projects....wish this had been available... I always wondered if I was able to contribute enough, how & what contributions made a difference, what improvements were made and how did these "impact the health system".
Do you know if initiators, leaders of health projects & their teams have received this or, when they will? And what has been their feedback.? I can see these modules will be very beneficial to everyone, enriching our work together. If we, patient advisors, are currently involved on projects, would you recommend we share this with our project sponsors? Again, many thanks. Denyse

[Sandra Holdsworth]

Denise, here is the message I received back from Julia re your comments.

Thanks, Sandra.

It’s great to get this positive feedback from Denise.

To answer her questions, we are planning a significant announcement and rollout of the toolkit in the New Year (early Feb) in conjunction with a series of webinars for toolkit users.

Some of this will be targeted directly to the OHT community but we plan to spread the word more broadly than this through our professional networks of engagement leaders and patient partners across the country, including through the PPEC, Healthcare Excellence Canada (HEC), and the National Health Engagement Network (NHEN).

Denise could certainly share the link to the website through her own network of colleagues and project sponsors, etc. as you have done through PAN, but we are asking organizations to hold off on major, formal announcements until the toolkit is formally launched in early Feb.

Pls feel free to forward this message to Denise or to post this in the PAN community forum.

Julia

[Brenda Andreas]

Excellent tool for all of us to use. And thank you for making it available for use by all stakeholders. I will share it with the pan-Canadian SPOR PIHCI Patient Advisory Council as well as within the SHA PFLC. This is something ANNIE LEBLANC and the NTE should see. Again get goose bumps when I think about how People Centered Care and Patient Engagement is evolving.

[Denyse Lynch]

Many thanks Sandra & Julia for your responses.
One suggestion for roll out I have is that all stakeholders, at some point i.e. the project sponsors, leaders, HEC, NHEN, etc.. AND patient partners participate "together" in sessions learning, discussing this initiative. Whether in webinars or group meetings, "acting" as partners from the roll-out outset has many advantages: sharing, discussing various stakeholder toolkit perceptions will break down perceived barriers, gaps that we know currently exist between partners. It would level assumptions and simplify the communication playing field, making it clear to patients how they can best contribute and employ their value while equipping sponsors, leaders, with more insights into patients' circumstances and their real underlying wants and needs.

Including both partners in a rollout, will facilitate discussions on toolkit use, reveal perceived benefits, concerns which can be explored. Mutual understanding will promote their ideas for any modifications as necessary. Following this, in the toolkit application, the partners will discover what works well, what needs adjusting while experiencing the benefits and improvement outcomes. They will also identify ways for using the toolkit which will enable continuous learning and improvements. Maybe most importantly, this partnership in toolkit utilization will lead to more effective, productive, meaningful work, partners' satisfaction and ultimately, health care system improvements.
Again, thank you.
Denyse