Categories

• About Public Involvement in Healthcare / Sur la participation du public dans le soins de santé

  Discussions about our involvement as advisors to healthcare bringing the patient and caregiver perspectives Des discussions sur notre participation en tant que patient partenaires en santé apportant les perspectives du patient et des soignants

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  Many people have experienced psychological trauma, as children, as adults, or in connection with healthcare experiences. This means that sometimes recounting experiences or contributing to research as a patient and public involvement partner or talking with healthcare professionals, can be distressing and can trigger memories from the original experience.

  This guidance is intended for healthcare professionals, staff who work in patient experience roles, healthcare organisations, researchers and any others who interact with service users and their relatives who are giving insight and feedback through a patient and public involvement process. It offers guidance on how to work with patient and public involvement partners in a way that is both psychologically and trauma informed.

  https://www.imperial.ac.uk/media/images/non-standard-dimensions/PPI-trauma-informed-guidance-2024.pdf

• Partnering in Research / Partenariat en recherche

  Discussions about being a patient / caregiver partner in all aspects research. / Discussions sur le fait d'être un partenaire patient / proche aidant dans tous les aspects de la recherche.

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  PAN_Report_Socials_Circle_LinkedIn Titled 800 x 420.png
  Reimagining the Research Landscape

  Making Research More Inclusive

  The culture in research needs opening up.

  How can we be fully embraced in a research workplace culture? The health research world is a unique culture. Like any workplace culture, it has its own norms, language, and ways of working that form unconscious assumptions -- becoming the research cultural lens. There is an implicit power imbalance between the “in crowd” and us as outsiders. This unease is seen in some of the unfortunate experiences we have as partners on teams and other aspects of research because of the unconscious bias of the research cultural lens.

• Education & Self Learning / Éducation et autoapprentissage

  Websites where there are webinars and courses to learn more about healthcare and citizen engagement. Sites Web où il existe des webinaires et des cours pour en savoir plus sur les soins de santé et l'engagement des citoyens.

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  Re: Health Data for All of US - Conference

  check out the stellar lineup of speakers, including PAN Co-Chair Alies Maybee . Those who have heard Alies talk, know this will be a thought provoking and inspiring session . check this out for details on who's talking and conference sessions
  https://www.hdrn.ca/en/news/health-data-for-all-of-us-convenes-stellar-speaker-lineup-in-montreal/